Showing posts with label Developmental Disability. Show all posts
Showing posts with label Developmental Disability. Show all posts

Thursday, June 25, 2015

Why are institutes still using the word “handicapped”?

The Hindu, 24 June 2015, New Delhi

A year after an advisory by the Union Ministry of Social Justices and Empowerment stating that various national institutes for persons with disabilities should discard the use of the word “handicapped” in their institute name and rename them — institutes continue to flout the recommendation and stick to “discriminatory names”.

National institutes such as National Institute for the Visually Handicapped, National Institute for the Hearing Handicapped, National Institute of Mentally Handicapped, National Institute of Visually Handicapped and National Institute for Orthopaedically Handicapped were instructed to remove the word “handicapped”, but to no avail.

“The word is simply not going away despite instructions to do away and replace it,” said disability activist Satendra Singh, Assistant Professor at University College of Medical Sciences and Guru Teg Bahadur hospitals.

“I wrote to the directors of these national institutes asking why the name hasn’t been changed so far. Nobody replied except the National Institute for the Hearing Handicapped. Even when the consultation and change was done last year, no consultation was done with disabled people organisations,” said Dr. Singh.

He filed an RTI application asking about the ban on the expression of the word “handicapped” and renaming national institutes accordingly.

“The response from the Ministry stated that that the file dealing with this issue was not readily traceable in the division. The information will be provided as and when the file is traced in the division,” said Dr. Singh.

He applied again in May and got a response stating that “a committee was set up under the Union Ministry of Social Justice and Empowerment and directors of the national institutes suggested following names in names for the establishments.’’

Boxed image: Name Game

1.      2007: India has ratified UNCRPD which makes it legally binding to harmonise all existing laws and policies in line with UNCRPD. The Convention uses the terminology ‘Persons with Disabilities’.
2012: The Chief Commissioner for Persons with Disabilities  banned the expression “handicapped”. 
1.      2014: Deptt of Disability Affairs was renamed as Department of Empowerment of Persons with Disabilities.


S.No
Name of the Institute
Name suggested by the committee
1.
Pt. Deen Dayal Upadhyaya Institute for the Physically Handicapped
Pt. Deen Dayal Upadhyaya Institute for the Persons with Physical Disabilities
2.
National Institute for Orthopedically Handicapped
National Institute for Persons with Locomotor Disabilities
3.
Ali Yavar Jung National Institute for the Hearing Handicapped
Ali Yavar Jung National Institute for the Persons with Speech & Hearing Disabilities
4.
National Institute for Mentally Handicapped
National Institute for Persons with Intellectual Developmental Disabilities
5.
National Institute for Visually Handicapped
National Institute for Persons with Visual Disabilities

The RTI added that the committee felt that there was no need to change the names of National Institute for Empowerment of Persons with Multiple Disabilities and Swami Vivekanand National Institute for Rehabilitation, Training and Research as they do not involve the expression handicapped.

“Negative terminology fosters attitudinal barriers. What is also shocking is the fact the Ministry of Social Justice and Empowerment doesn’t have the facility to provide information (circulars or RTI responses) in Braille. They told me that this information can be formatted only at the National Institute for Visually Handicapped, Dehradun,” said Dr. Singh.

While the directors of the institute refused to comment on the issue saying they were not authorised to speak to the media, a senior ministry official said the change of name was a long drawn process and takes time.


Source: http://www.thehindu.com/news/cities/Delhi/why-are-institutes-still-using-the-word-handicapped/article7348415.ece

Sunday, November 23, 2014

Success! No routine transfer to Govt employee having children with autism


Department of Personnel & Training (DoPT) issued a circular 'Posting of Government employees who have differently abled dependents-reg' vide O.M No.42011/3/2014-Estt.(Res) dated 6th June 2014.

The Government order stated that a government servant, who is also a caregiver of disabled child, should be exempted from the routine exercise of the transfer.

Upbringing and rehabilitation of a child with disability requires financial support and “making the government employee choose voluntary retirement on the pretext of routine transfer or rotation transfer would have an adverse impact on the rehabilitation process of the disabled child”, the order had said. However, the order had left out developmental disabilities like autism.

Coordinator, Enabling Unit of UCMS & GTB Hospital wrote to Dr Jitendra Singh, MoS (PP), Department of Personnel and Training, Ministry of Personnel, Public Grievances and Pensions to include developmental disabilities on 16th June in the following mail:

From: Satendra Singh <dr.satendra@gmail.com>
Date: Mon, Jun 16, 2014 at 3:06 PM
Subject: Request to include left out disabilities in DOPT circular on transfer policy
To: mos-pp@nic.in
Cc: secy_mop@nic.in

Dear Dr Singh,

Ref: No.42011/3/2014-Estt.(Res.) dated 6th June 2014 on the subject: Posting of Government employees who have differently abled dependents — reg

​First of all accept my heartiest congratulations on the DOPT circular on transfer policy as quoted above. It was much needed for parents having a disabled ward. However, the circular doesn't take into consideration parents of the people with autism and developmental disabilities.​ Moreover, all 19 disabilities included in Rights of the Persons with Disabilities Bill should be included.

I request your office to kindly include necessary changes so that these excluded section is included too. Hoping for a quick action from your side.

with regards

Dr Satendra Singh
Coordinator, Enabling Unit (persons with disabilities)
UCMS & GTB Hospital Delhi


He also complained on their public grievances portal bearing the reference number ​DOPAT/E/2014/01622.


The media reported that government had received representations in this regard. It was argued that an employee raises a kind of support system over a period of time in the locality where he or she resides to help rehabilitate their disabled child.

Minister of State for Personnel Jitendra Singh on Monday took the decision to include autism in a list with the Department of Disability, after the Department of Personnel and Training (DoPT) examined the scope of bringing the developmental disorder under the definition of disabled.

“Considering the fact that a child with autism spectrum disorder requires constant support of a caregiver and it would be imperative for government employees with such children to take of their child on a continuous basis, it has been decided to include ‘autism’ in the term ‘disabled’ in the office memorandum,” read the DoPT order 'Posting of Government employees who have differently abled dependents-reg' vide O.M No.42011/3/2014-Estt.(Res) dated 17/11/2014.

Its a success to all the caregivers posted in central government. Both the orders can be found here:

Circular portal of M/o Personnel, PG and Pensions

Amended circular is reproduced below:

No.42011/3/2014-Estt.(Res.)
Government of India
Ministry of Personnel, Public Grievances and Pensions
Department of Personnel & Training
North Block, New Delhi
Dated the 17th November. 2014
Office Memorandum
Sub: Posting of Government employees who have differently abled dependents – reg.
The undersigned is directed to refer to this Department’s OM of even number dated 06.06.2014 (copy enclosed) exempting a Government employee, who is also a care giver of disabled child, from the routine exercise of transfer/rotational transfer subject to the administrative constraints. The word ‘disabled’ includes (i) blindness or low vision (ii) hearing impairment (iii) locomotor disability or Cerebral Palsy (iv) leprosy cured (v) mental retardation (vi) mental illness and (vii) multiple disabilities.
2. The matter regarding the scope of ‘disabled’ has been examined in consultation with the Department of Disability Affairs. Considering the fact that the autism spectrum disorder child requires constant caregiver support and it would be imperative for the Government employees to take care of their autism spectrum disorder child on continuous basis, it has been decided to include ‘Autism’ in the term ‘disabled’, as defined in Para 3 of the above-mentioned O.M. dated 06.06.2014.
3. This issues with the approval of the MoS (PP).
4. All the Ministries/Departments, etc. are requested to bring these instructions to the notice of all concerned under their control.
sd/-
(G. Srinivasan)
Deputy Secretary to the Govt. of India

Monday, April 1, 2013

Red Flags for Autism Spectrum Disorder


Autism Spectrum Disorder (ASD) is a complex neurological and developmental disorder that affects how a person acts and interacts with others, communicates, and learns. ASD affects the structure and function of the brain and nervous system. Because it affects development, ASD is called a developmental disorder. ASD can last throughout a person's life. People with this disorder have problems with:
  • Communication
  • Interactions with other people (social skills)
  • Restricted interests and repetitive behaviors
The symptoms of one person with autism can be very different from the symptoms of another person with autism. Health care providers think of autism as a spectrum disorder - a group of disorders with a range of similar features. 

The United Nations General Assembly unanimously declared 2 April as World Autism Awareness Day. On the eve we present before you certain valuable information for mass awareness. 


ASD includes: 
·         
  • Autistic disorder ("classic" autism). Autistic disorder is often what people think of when they think of autism.
  • Asperger syndrome. This ASD usually involves milder symptoms, mostly related to social behaviors.
  • Pervasive developmental disorder not otherwise specified (PDD-NOS, or "atypical" autism). PDD-NOS includes some, but not all, of the features of classic autism and/or Asperger syndrome.
One person with autism may have mild symptoms, while another may have more serious symptoms, but they both have ASD.
Despite the range of possible symptoms, there are certain actions and behaviors that are common in ASD and could signal that a child is on the autism spectrum. Parents and caregivers who notice these "red flags" should speak to their child's health care provider about autism and screening the child for ASD.
In general, the main signs and symptoms of ASD relate to:
  • Communication
  • Social behaviors
  • Routines or repetitive behaviors, sometimes called stereotyped behaviors

 Red Flags for ASD

Communication

Note about these red flags:

Some of these red flags apply only at certain ages, so consider what's typical for other children your child's age.

Some red flags are more strongly associated with autism than others.

If your child shows any red flags for autism, talk to his or her health care provider right away.
  • Does not respond to his/her name by 12 months of age
  • Cannot explain what he/she wants
  • Language skills are slow to develop or speech is delayed
  • Doesn't follow directions
  • Seems to hear sometimes, but not other times
  • Doesn't point or wave "bye-bye"
  • Used to say a few words or babble, but now does not

Social Behavior

  • Doesn't smile when smiled at
  • Has poor eye contact
  • Seems to prefer to play alone
  • Gets things for him/herself only
  • Is very independent for his/her age
  • Seems to be in his/her "own world"
  • Seems to tune people out
  • Is not interested in other children
  • Doesn't point out interesting objects by 14 months of age
  • Doesn't like to play "peek-a-boo"
  • Doesn't try to attract his/her parent's attention

Stereotyped Behavior

  • Gets "stuck" doing the same things over and over and can't move on to other things
  • Shows unusual attachments to toys, objects, or routines (for example, always holding a string or having to put on socks before pants)
  • Spends a lot of time lining things up or putting things in a certain order
  • Repeats words or phrases (sometimes called echolalia [pronounced ek-oh-LEY-lee-uh])

Other Behavior

  • Doesn't play "make believe" or pretend by 18 months of age
  • Has odd movement patterns
  • Doesn't know how to play with toys
  • Does things "early" compared to other children
  • Walks on his/her toes
  • Doesn't like to climb on things such as stairs
  • Doesn't imitate silly faces
  • Seems to stare at nothing or wander around with no purpose
  • Throws intense or violent tantrums
  • Is overly active, uncooperative, or resistant
  • Seems overly sensitive to noise
  • Doesn't like to be swung or bounced on his/her parent's knee, etc

Info Source: NICHD